The pain associated with EDS is not like the typical pain you experience from being hurt or sick. It has a mind of it's own. Our pain levels can vary from moment to moment let alone day to day. Most people want to leave others alone when they're sick, but what they don't think about is that we're not sick, we're just this way! There is no other way that we have ever been and there is no other way that we will be in the future. We have always been like this, we LIVE like this and we intend to keep doing so.
A good example of this is my current situation. For quite awhile I had let my muscles and tendons stay tight all the time because it was simpler. I ran into problems because of it, but I kept telling myself it was easier this way. I ignored doctor advice telling myself that they didn't understand my condition, which they still don't.
